I am so sorry to hear about your depression episodes. And you are not an
oddball. You are simply a person with a disease. Now you should know
something. You are not alone with your depression, it is just what a lot of
people go through with this disease.
I always say that CML is a disease of the body and mind. It makes you think
some terrible thoughts. However if you see what this is all about you will
have a better choice of becoming less depressed. You just have to try and
look for some of the good things in your life.
Here is a story about what happened to me when I was going through my bone
marrow transplant... I was confined to a small plastic bubble called a LAF
unit which was in the cancer ward of Mount Sinai Hospital. It was only 6X9
feet and I spent seven months in there.
Sure at times I would become depressed but I was able to handle it most of
the time. I just put my mind someware else. I want you to think about a
There you are sitting on one side of it with all of your problems on your
shoulders just weighing you down. Now start taking some of the good things
in your life and start putting them on the other side. What happens? Well
you start lifting yourself up and your burdon becomes less.
Kelly, another example is for everyone to put all of their problems into a
brown paper bag and put it in front og your door. What bag would you grab?
Would you want to grab someone else's bag not knowing what problems that
may have? At least you know what you aregoing through, and you also know
that there are drugs that are keeping yu alive. What you don'r know is what
is in the other bags.
Everyone has problems. Some more then others and some less then others.
Kelly, would you pick your own bag? I would even though I have to go
through dialysis. I am still alive, and so are you.
Whenever your feeling depressed just think about what I just said. Your
mind can control your body. I'm not saying that your mind is able to cure
cancer but it can help you going through it.
No more talk about feeling suicidal. By the way crying is a good thing as
long as you don't do it all of the time. It is good because iy relieves the
pressure that your under. Even I cried when I went through it. Remember
that Leukemia is a disease of your body and it is also poison to your mind,
at least it was for me.
Kelly I am sending you many 18's you just keep on keeping on
> Does anyone else suffer from severe cycles of depression related to
> the TKI's? I have taken all 3 (Gleevec, Sprycel and Tasigna).
> During "vacations" from these drugs and prior to diagnosis, I had
> never experienced such severe depressive episodes.
> I'm talking about a tornado touchdown with complete devastation to the
> point of suicidal ideation. Can't stop crying, hide from the world and
> just die. Bleh!
> They plop me on various antidepressants every time I start a new TKI,
> which are totally ineffective and increases various side effects. I am
> one of the oddballs that gets rare side effects and I react badly to
> just about everything they give me.
> So, I'm probably the oddball who reacts psychologically to these
> drugs, too. I can't explain it, control it or avoid it.
> Just curious - anyone else?
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